Parenting Without a Net: Loving Ronan “to the end of his life, and then I will let him go”

By Dave Andrusko Editor’s note. October is Down Syndrome Awareness Month. I wrote the following story two years ago, so it’s not new. Emily Rapp’s child has Tay Sachs, not Down syndrome. One is fatal, the other means the child could well have a more-or-less normal lifespan. But what she had to say about parenthood …

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Parenting Without a Net: Loving Ronan “to the end of his life, and then I will let him go”

By Dave Andrusko Many of our readers are parents, with a well-developed, acute sensitivity to children and their health. My wife and I have four kids (and now a granddaughter), and we have been blessed that none have serious, let alone life-threatening, illnesses. In the back of my mind I recognized the name Emily Rapp. …

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