By Dave Andrusko The two items are related but not the same. The first is a story that ran Wednesday on NPR celebrating the latest ‘advance’ in diagnosing our unborn children. “Blood Test Provides More Accurate Prenatal Testing for Down Syndrome” is the headline. The latter appeared in the New York Times and is …Continue reading "An unflinchingly honest look at caring for a chronically ill child"
By Jess Clark When you live with a chronically ill child, certain words and phrases become a permanent part of your lexicon. One of my least favorite is “quality of life”, where we attempt to ascertain the value of another human’s existence. We heard that phrase for the first time in 1999, as we fought …Continue reading "How do you measure the quality of a life?"